More thoughts on ADHD medication, specifically amphetamine, after a year.
Like lots of people, I started them and BANG! Neo waking in his pod in The Matrix. Life changing. The scales fell from my eyes. I suddenly understood. It all made sense. The stuff I found so incredibly difficult for half a century and other people could just ... do it?
I wept.
"Don't chase the high", they all warn. What does that mean?
About 4-6 weeks later I had an argument with Zoe. I felt some of the old behaviours creeping back in. What? Why is that happening?
Then I started to go to bed late again, and procrastinate, and some of the other stuff. Not all though, I kept the place clean. The piles of clothes never came back. I was still getting relief from sensory issues.
And each new titration dose brought it all back.
Until titration stopped, and I was on my final dose.
And it slipped, slowly, it slipped.
Why did it slip? "Tolerance! You have become tolerant to amphetamine! Take a meds holiday!", they all chant.
I tried. I got as far as 3pm before I couldn't stand the bullshit.
Thing is, the evidence that drugs tolerance to therapeutic doses of amphetamine in ADHD even develops is ... dubious. There's a great video by Russell Barkly on this, here: youtu.be/RbZjL7czIy0?si=6xHaoY…
It's not though. I worked out what has happened, and it's fine.
Unmedicated, undiagnosed ADHD is marked by horrible disregulated emotions (more severe in the combined (me) and hyperactive forms I believe), non existent executive functioning, difficulty focusing, and yada yada.
It is, in a nutshell, "really bloody awful".
If you think you have ADHD but are undiagnosed, you possibly just read that and felt like a fraud, didn't you? "But I don't feel that awful!"
How do you KNOW? You have never known any different.
Because here's the thing. You grow up with this crap and you start to mask it, because you HAVE to.
But masking and coping strategies are profoundly psychologically expensive. They destroy us with burnout run the long run.
So we mask to the point where we can more or less make it through the day, and no more.
And it's a pretty sodding miserable existence (Yes, it really is, yes, for you, person reading this wth "some traits". Lots of stuff you accept as a normal part of being human simply is not. I know you don't believe me, even if you think you do. I wouldn't have believed me either).
And then we get diagnosed.
And medicated.
It. Goes. Away.
It all goes away.
Annnnnnnnd breathe!
You are suddenly Mr Spock. You are impervious to your emotions. You can just DO STUFF! You CAN clean the house and you DO and you ENJOY IT! What witchcraft is this?
"I'm cured! Why did nobody tell me about this?" (We did. You ignored us)
You also aren't cured. You still have ADHD.
Your emotions are still there.
You still have executive dysfunction,.
You still struggle to focus.
All of it. It didn't go away.
You just can't hear it.
Why? Because ... well, you are outside and it's stupid sodding bright, and loud. Insanely loud.
And you've been out there for hours.
Then you come into a dim room which is quiet. You can't see anything, you can't hear anything. It's all there though, just below your level of sensitivity.
A few month later when stuff starts coming back and you conclude the meds are failing? They aren't. Your eyes are adjusting to the dark.
Here's another metaphor: A shelled of water has been dumped on a landscape, continually, over thousands of years. It carves out a basin. It finds its level. Water always finds its level.
Move it to the side and it will flow back into the basin it carved. And so it is with us. We start meds and the level of effort we have always applied to make it through the day, which was borderline killing us, suddenly makes it STUPIDLY EASY.
Borderline killing us. Still is.
So you start to dismantle your big expensive coping strategies, because they were hurting you.
You dismantle them until ... well, you start to approach the level of functionality, or rather disfunctionality that you are used to. And then you stop.
Because water finds its level.
You conclude they aren't working, so you take a meds break and OH MY GOD IT'S HORRIBLE.
What the hell is going on? You turned the bloody difficulty knob up to max again. That's what the hell is going on.
After a week you start meds again, and they magically work! IT WAS TOLERANCE ALL ALONG!
No it wasn't, you muppet. You just started to match your effort to the difficulty level again.
You can get trapped in this cycle.
Or you can realise that you deserve a rest, you've had a rest, and that's nice. Now get up and do your goddam laundry, which is a thing you can do, and is still far easier than it ever was.
That is all.
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AudhdDespiteNoisyAbleism 🇨🇦, Looking for explanations…, Hugs4friends ♾🇺🇦 🇵🇸😷, slow learner deep feeler🦋🌿❤️🔥, Kliplet and 🆘Bill Cole 🇺🇦 reshared this.
Zoë O'Connell
in reply to Sarah Brown • • •My view is that anyone starting medication must, on the day before first dose, take a photo of every room in their house. This is to be saved in a folder called "The meds have stopped working", and shared with all friends.
If you ever say "The meds have stopped working", your friends are to pick one photo each and ask you to replicate the photo.
There will then be a comparison session, showing what your house used to look like vs now.
Sarah Brown likes this.
Heather 👻
in reply to Zoë O'Connell • • •Heather 👻
in reply to Heather 👻 • • •Sarah Brown
in reply to Heather 👻 • •Heather 👻
in reply to Sarah Brown • • •Sarah Brown
in reply to Heather 👻 • •Kliplet
in reply to Zoë O'Connell • • •@zoe This really got me!
I have been on meds for 4 years now and have gotten past the question of does it still work? Any time I have questioned and stopped taking them, I have lasted no more than 3 days before I’m crying and screaming to have them again. My biggest symptom relief is RSD. They still work amazingly well.
But your post has reminded me that I live in a house that is tidier than it would have been in the past. And that’s with no conscious effort. Not driven from anxiety. Not from the fear that someone will visit and I need to fix the house so I don’t look like a failure of a person. Sometimes it’s messy, I don’t like it, and I tidy up.
I had forgotten how I used to be.
#ADHD #AuDHD
AudhdDespiteNoisyAbleism 🇨🇦
in reply to Sarah Brown • • •Sarah Brown likes this.
Lady Bruh🖖🏼🏳️🌈
in reply to Sarah Brown • • •Sarah Brown
in reply to Lady Bruh🖖🏼🏳️🌈 • •@Lady Bruh🖖🏼🏳️🌈 The "official" symptom list is not actually the real symptoms of ADHD which is a problem. It's just the things about ADHD that annoy neurotypical people.
Here's the real symptom list (or rather the "female-typical" one)
You can't accomplish your goals BECAUSE they're your goals.
You will spend your entire day doing nothing, poorly. You will resolve to do better tomorrow. You will mean it. You will not do better tomorrow.
You think that you annoy everyone and everything that you say is stupid and yet you say it anyway and can't understand why you do that.
Everyone secretly hates you. Including you. You secretly hate you. This is an immovable fact of the universe and no evidence to the contrary will convince you otherwise.
You will EITHER have temper tantrums that seemingly come out of nowhere, but are actually the straw that broken the camel's ba
... Show more...@Lady Bruh🖖🏼🏳️🌈 The "official" symptom list is not actually the real symptoms of ADHD which is a problem. It's just the things about ADHD that annoy neurotypical people.
Here's the real symptom list (or rather the "female-typical" one)
You can't accomplish your goals BECAUSE they're your goals.
You will spend your entire day doing nothing, poorly. You will resolve to do better tomorrow. You will mean it. You will not do better tomorrow.
You think that you annoy everyone and everything that you say is stupid and yet you say it anyway and can't understand why you do that.
Everyone secretly hates you. Including you. You secretly hate you. This is an immovable fact of the universe and no evidence to the contrary will convince you otherwise.
You will EITHER have temper tantrums that seemingly come out of nowhere, but are actually the straw that broken the camel's back, except you've been swallowing them for ages, and then you just fucking SNAP, and you say horrible things that you don't mean and you are in there yelling at yourself to STOP but you do not.
OR you will turn that rage on yourself, never allowing yourself to get angry with another human being ever.
You have impostor syndrome about literally EVERYTHING.
Nothing you are good at counts as an accomplishment. Only things you can't do.
You CANNOT take a compliment. One of the nastiest things anyone can ask of you is to say something nice about yourself.
You would rather have a barbed wire colonoscopy than take those clothes out of the washing machine. You know, the ones that have been there 2 days.
WHY WON'T THE MUSIC IN MY HEAD STOP?
You rehearse all your conversations. You dictate your thoughts before you have them. Your thoughts race and when you speak, your speech has actual sodding PARENTHESES in it where you go off on digressions and probably forget what the fuck you were talking about half way through the sentence.
"Why am I always 30 seconds late or 2 hours early for everything?"
"Why can't I sleep?"
Leg go bounce
LEAVE THE INSIDE OF YOUR CHEEK ALONE
And your nails, unless you pick your nose, or pull skin off your feel instead. Or all three. Probably all three (weirdly I never bit my nails)
You likely has several of the following comorbidities: POTS, hEDS, autism, migraines, IBS, Mast Cell Activation Syndrome, Tourettes Syndrome, some sort of autoimmune disease, gender dysphoria (really). Nobody knows why.
I could go on. I will stop now.
When I first came across a list like that, I freaked the fuck out.
Lady Bruh🖖🏼🏳️🌈
in reply to Sarah Brown • • •Oh wow! Yeah!
Please kindly get outta my head.
Lady Bruh🖖🏼🏳️🌈
in reply to Lady Bruh🖖🏼🏳️🌈 • • •Sarah Brown likes this.
Sarah Brown
in reply to Lady Bruh🖖🏼🏳️🌈 • •@Lady Bruh🖖🏼🏳️🌈 You don’t think like them.
However alien you think your thoughts are to them, I promise it’s more alien than that.
Oh. Here’s a fun one. You try to share things you love and bring you joy with people and they get really angry.
Lady Bruh🖖🏼🏳️🌈
in reply to Sarah Brown • • •Sarah Brown
in reply to Lady Bruh🖖🏼🏳️🌈 • •@Lady Bruh🖖🏼🏳️🌈 Yeah. The number of times I have fucking SCREAMED, “what I need matters! I matter! Why does nobody think I matter?”
We do it to ourselves, by the way. Explaining how without the meds is hard and mine stopped working 3 hours ago.
Sarah Brown
in reply to Sarah Brown • •@Lady Bruh🖖🏼🏳️🌈 “I never ask for anything. I drop hints and hope the other person notices. If I ask that is not only selfish and arrogant; they might say no and they would be devastating”.
Ok. I’m done. Promise. I’m gonna put the dopamine slab back on its charger and sleep. ‘Night.
Lady Bruh🖖🏼🏳️🌈
in reply to Sarah Brown • • •I’m in this picture and etc etc
Hope you have a good sleep!
Sarah Brown
in reply to Lady Bruh🖖🏼🏳️🌈 • •@Lady Bruh🖖🏼🏳️🌈 Sorry. Sincerely. I just gave you the cursed gift.
But also the gifted curse. Or something.
The drugs are very very good.
Lady Bruh🖖🏼🏳️🌈
in reply to Sarah Brown • • •Sarah Brown
in reply to Lady Bruh🖖🏼🏳️🌈 • •@Lady Bruh🖖🏼🏳️🌈 Find an actual specialist.
Not a general psych who “also does ADHD”. Someone who knows what the fuck they’re talking about.
Because a depressing number of them think ADHD means “you run around, can’t focus, and is incompatible with having any academic qualifications or tits”.
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Lady Bruh🖖🏼🏳️🌈
in reply to Sarah Brown • • •Thank you so much!!
Sarah Brown likes this.
Wulfy—Speaker to the machines
in reply to Sarah Brown • • •Scary post.
So you either mask or medicate.
Sarah Brown
in reply to Wulfy—Speaker to the machines • •@Wulfy—Speaker to the machines Some people do both.
Which is dumb as shit.
Cy
in reply to Sarah Brown • • •From what I've been told, people get more sensitive to amphetamines over the long term. I dunno any specific studies though. When I went on amphetamines, it was the same year My Little Pony: Friendship is Magic came out, so I can't say which of those two things contributed to my ability to suddenly write a few novels. All I could really feel from the drug was sleep deprivation and a racing heart. I can say now that the show is dead, and I finally got off those awful amphetamines, I have worked on... one new story for the past 6 years, with no ideas for anything more.
At least it's not pony related.
A Bloody Mess
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