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in reply to Sarah Brown

my wife is on it too, and it has transformed her life (and mine by extension). She’s a pharmacist and was concerned about the need to keep increasing the dose as time goes by, so she takes it for a few days and then takes a break, sometimes up to a week. She’s been able to reduce the dose doing this, which is helpful when shortages are common. YMMV, she knows what she’s doing, ask someone who does if you want to experiment.
This entry was edited (2 days ago)
in reply to Nicovel0 🍉

@Nicovel0 🍉 Yeah. I think I will be taking regular med breaks. Stagger them with the rest of my household so we have a responsible adult to look after the chaos goblins.
in reply to Sarah Brown

The BP thing is what I think will keep me from meds. I'm anxious about BP taking even at home.

Already had an arsehole consultant say I can't have meds cuz i had childhood epilepsy (no seizures or meds since i was 12 so over 30 years) and because my dad had heart issues so 🤷

I do like your posts, though, they give me hope. One day I might afford private.

in reply to Sarah Brown

...sigh... Sadly yes but most likely y-chromosome linked as his dad and his grandfather also passed from it.

I, however, have a more active lifestyle, not having a car and relying on my legs to get my chubby body around.

I have a heckin load of terrible maladies in my family history, without having anything major so far myself.

in reply to Heather 👻

@Heather 👻 Perhaps you are, you know, for the duration of the consultation, misremembering.

Like how we misremember to take our HRT dose before a blood test.

So forgetful.

in reply to Sarah Brown

TBF I could be... 🤔 And both parents dead and sister not in contact since probate ended 4 years ago, oopsie
in reply to Sarah Brown

having said that, I do occasionally leave out the epilepsy thing because I feel it's non-relevant and too many health professionals have never heard of rolandic epilepsy that you grow out of.
in reply to Heather 👻

@Akki Depending on the heart issue your had had, that may not be an issue - they're predominantly only concerned in the really serious stuff. And even then it's often just a case of more monitoring.

BP unlikely to be an issue if it's controlled. Someone I know is on multiple BP meds for otherwise insane levels of hypotension and it wasn't a concern. (Just stop/tweak the meds if it goes up I guess)

in reply to Zoë O'Connell

@zoe I don't know exactly what my dad had, I think it was hardening of the arteries and quadruple bypass surgery. He had a pacemaker in later life due to medical malpractice (his GP got too concerned with raising magnesium levels? So potassium spiked and fucked his heart that way)
Literally just dropped dead one day at 67.

I think the consultant was being arsey about "first" heart attack or something and he wasn't diagnosed with that until bypass surgery.

in reply to Zoë O'Connell

@zoe I am not on BP meds or any meds right now, but it's good to know if I had to get it controlled first it's not like no ADHD meds forever. Ta.
in reply to Heather 👻

@zoe
12 May I hear the response to my official complaint. We'll see if they can offer outside assessment or just fuck me over some more and claim i'm just "unhappy" with the suggestion of ASD/anxiety/whatever they wanna make up.