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in reply to Zoë O'Connell

@zoe @marlies

Always interesting seeing variation in what meds do and don't allow and how to balance desirable and less-desirable things and learning to live with a changed neurology.



ADHD med titration continues apace. I’m sticking with 50mg Elvanse (lisdexamfetamine) and adding in 10mg Amfexa (dexamphetamine) as a booster to get me through the evening.
Unknown parent

@Becky Yeah. They’ve basically fixed my IBS and reflux issues too.


I honestly never dreamed my life would go in the direction of having to manage the duality of being a functional adult who can do adult things in the daytime and is sensible and all that stuff, and a chaos goblin by the evening.

The transition I saw coming from a long time before, if I’m being honest. But while neurodivergence was always obvious to anyone who met me, finally getting the actual answer and following it through to Planet Amphetamine and all that implies has blindsided me a bit.

These drugs are very very weird to be on.

But they may have saved my life.

in reply to Sarah Brown

I'm glad the drugs are so helpful, I know there's huge variation in how helpful they can be, but so positive at such an early stage. Hope your titration/jibbling continue to go well and you get an optimal configuration for you.


The single weirdest thing for me about being on Elvanse for ADHD is getting to spend each day as a functioning human being with regulated emotions and executive function, but knowing that the clock is ticking and that when the timer runs down I am going to return to being a self-hating hyperactive messy vial of emotional nitroglycerin.


Oh god. I am feeling utterly SEEN by this. #ADHD m.youtube.com/watch?v=k-k2_Lio…
#adhd


Extreme sports, Iberian edition: about to take the lift.

Mark Asser reshared this.



Having my first day off Elvanse.

Plan is all about self care. Avoid stressful stuff. If there is ANY hint of pushback against anything that needs doing, then I will make it a problem for future Sarah.




Who sets up a business and decides to call it Fahrenheit 451 (Communications) Ltd?


I feel like there’s a lot of reverse ableism with people telling me that the REAL problem with ADHD is that I am “traumatised” by a world that isn’t adapted to my needs and that were it not for this “trauma”, I would be able to function just fine.

If it’s trauma, why does a single pill that raises my dopamine levels switch it off like a light switch and turn me into an emotionally stable adult with executive function?

in reply to Sarah Brown

I had a shower and thought more (as you do) and maybe it's just the usual problem of people projecting their own problems. Also medication only works for about 70% of people with ADHD and not everyone has the glorious epiphany you have (congrats tho!)

Also I wonder, like in my case, my DMN is rather strong and annoying... Combined with high empathy (confirmed medically kinda now due to the stupid ASD screening) it's a rather hard-mode life for me.



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in reply to Heather 👻

@zoe
12 May I hear the response to my official complaint. We'll see if they can offer outside assessment or just fuck me over some more and claim i'm just "unhappy" with the suggestion of ASD/anxiety/whatever they wanna make up.


Am I just deluded in thinking that when I was a younger adult, journalists at least PRETENDED to hold politicians to account?
in reply to Sarah Brown

no, everybody has just had media training now and so never actually answers a question- it's infuriating!
in reply to Grant Stephens

@Grant Stephens It's not just this. They don't need to not answer them if the journalists won't even ASK them.
in reply to Sarah Brown

Yup, this is true too. I supposes its just a function of not having impartial media :\


I love the way depression makes it impossible to make decisions while also making me postpone them until the time they are most stressful




One thing I did NOT expect from ADHD meds: much easier to put my contact lenses in.

I guess my eyes are no longer darting about all over the place.

mxk reshared this.



Worthwhile copypasta from a friend.
Please help push back against the transphobic UK Supreme Court judgment. Philippa East has created an excellent letter that you can co-sign using this link.
forms.gle/FZXBWzWFx4fHhPAL8
#TransRightsAreHumanRights


Elvanse LOWERING my BP

It’s supposedly at risk of doing the opposite.

How bloody stressed was I before?

in reply to Sarah Brown

For about a year now every day after lunch when the second Medikinet dose kicks in, I get so sleepy that I have to sleep for 30min on our couch. Coping is stress and you get so used to it... 😩
in reply to Sarah Brown

This is why my kid drinks coffee to help them sleep


Still not got a good answer to the question of how neurotypicals have fun.

Like, it has recently come to my attention that you lot get a dopamine reward for picking up your socks off the floor and putting them away. I have now experienced this and, wow! Yeah. Very cool! Neat trick you have there.

So why spend money on leisure activities when you can just pick shit up?

reshared this

in reply to Kincaid

@Kincaid Honestly it feels pretty good to me.

But I guess I’ve been on starvation rations for 51 years.

in reply to Kincaid

@Kincaid Update: yeah. Ok. Fair enough.

The novelty of ANY hit at all was quite a thing at first. Now I appreciate your point.

in reply to Sarah Brown

and the hit isn't for doing the laundry, it's for not having to do the laundry in the immediate future. The doing still sucks
in reply to Kincaid

@Kincaid Laundry pile is smaller.

Look, I've seriously been STARVING my entire life. A biscuit is a banquet.



Somehow reassuring to see the Guardian and Observer getting absolutely mauled for their transphobia. Dump that trashfire of a paper. I think by normalising transphobia among the soi-disant left they’ve done as much if not more harm than the right wing press.

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It’s really starting to hit me now. All those years I wasn’t lazy. I wasn’t deliberately obstructive. I wasn’t thoughtless. I wasn’t careless. I wasn’t a deliberate arsehole.

My neurology literally wouldn’t let me slow down, do stuff, talk quieter, not interrupt, not go from 0 to “temper tantrum” in 2 seconds, remember where I put the thing I was holding 1 second ago. Not want to end people for talking too slowly.

One pill fixes it all. One sodding pill.

51 years.

There’s more grieving to come here, I think. A lot more.

And no, everyone is NOT “a little bit ADHD”. You have no bloody idea.

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in reply to Sarah Brown

@Ghost of Hope 🏳️‍⚧️ Just remember, nobody in your family has cardiac issues. You do not do substance abuse. You have never borrowed someone else's prescription medicine.

Because of course you wouldn't do those things.

Unknown parent

friendica (DFRN) - Link to source
Sarah Brown

@Ghost of Hope 🏳️‍⚧️ Heart failure in extreme old age probably fine.

They will get weird if they think you might have cardiac issues.



First few days on Elvanse and wow! This stuff is honestly astonishing.

If you’re seeing this on Bluesky it’s auto cross posted from fedi. Breaks might be in odd places.

It’s essentially created two versions of me. There is medicated me who is a competent adult and can Just Do Stuff and unmedicated me who is mot, and cannot (but who is fun and lovely and is the version writing this).

On the way up the transition between the two is smooth and continuous.

On the way down it is not. I can feel it starting to fade over above half and hour then it reaches some critical level and o spend 10-15 minutes just crashing.

And then I’m the person writing this again, but a bit dazed and bewildered.

I’m hoping this will get smoother. At the moment it leads to almost a discontinuity in personality, but only on the way down, where afterwards I simply cannot conceive of being the person I just was.

I think I need to get into the habit, before it wears off, of leaving myself something nice for just after the crash.

in reply to Llwynog

Years ago, people would have described my aversion to small talk as "autistic". But this implies lacking the skills to make small talk. I avert it due to it requiring me to concentrate (on something that wastes time); it has nothing to do with an inability to schmooze, otherwise I would not have reached where I have in my nursing career. Understanding this, instead of lazily describing it as "autistic", has helped me gain a greater understanding of my life.


I just took a very satisfying dump in the ladies’. I imagined every transphobe was down there.





Searching for hydrochloric acid on amazon.

It offers me sodium hypochlorite.

Fuck's actual sake

in reply to Sarah Brown

I think you will find that shipping of HCl is problematic. I suggest you look for a local builder's supplier or DIY store (if there are any in your area).
in reply to Sarah Brown

you can't even get the full strength stuff anymore. Unless you can find a shop still selling "professionals only" grade stuff. Bah!


Decaffeinated Yorkshire Tea is entirely satisfactory. This is a useful discovery.

Malwen reshared this.

in reply to Sarah Brown

I chain drink decaff Twinnings Everyday, have deliveries of coffee beans from Decadent Decaff and for at the Hackspace keep decaf Nescafe Azure. That mostly keeps me ticking.

Not all the decaffs are equal. That took a few goes. Some brands put a bit more care into it than others. And if you're shopping at supermarkets, I've noticed you have to go to the larger ones to get access to more than one brand on the shelf.






One of the more unhelpful trauma responses that’s resurfaced this year is the fear of copying. When I was a kid I was mocked for picking up interests from friends, so I used to try hard not to do that or to be cautious or contrary in how I developed interests.

I learned not to do this at some point, especially with transition initially (which I think I knew had to be about me and nobody else whatever my brain said) but it’s come back this year. I have to fight against an urge to reject for myself anything people I know find positive.



Filing under “fun realisations about ADHD”

We probably pretty much never make threads on r/AmITheAsshole

Because we already know.

Unknown parent

friendica (DFRN) - Link to source
Sarah Brown
@CORRUPT Hey, that's a quality dopamine source that is.
Unknown parent

friendica (DFRN) - Link to source
Sarah Brown
@CORRUPT Thanks for your input


Just got a letter from local Lib Dem’s.

It was insipid as fuck

So I voted green

in reply to Sarah Brown

I am voting Green more often. Hacked off with Labour, Hate everyone else.


About to start my Elvanse titration.

No alcohol or caffeine for 3 months.

Oof!

in reply to Sarah Brown

I am surprised they didn't start you on Methylphenidate first, as Elvanse is usually a second-line treatment. Do let us know how you're getting on with it. I'm using far fewer energy drinks than pre-treatment so I think it's working.
in reply to Llwynog

@Llwynog Everyone I’ve seen get diagnosed in the uk recently has been started on Elvanse


Went out for dinner with Zoe’s parents. Shut down at the end as I tend to do.

Then had to walk back home through the city centre which was a riot of overstimulation and horrific. Just needed to get away so I walked really fast.

Every time I did this before I was like, “what the fuck is wrong with me? Why am I like this?” And I’d get angry with myself and that would often devolve into an argument.

But I now know exactly why I’m like this.

And it isn’t my fault.

And there was no argument.

in reply to Sarah Brown

That sounds like the best thing of your recent diagnosis, learning to accept you are what you are. I’ve never thought WHY I am like who I am, just that I am. And yes I relate to the shutting down…


May I present the glory that is seat 2A on a Ryanair 737-8200.

They only charge like 30 euros for this.



Oh, news. Said on Bsky but not here.

I have combination inattentive/hyperactive ADHD, officially.

I'm going to be starting treatment.

in reply to Sarah Brown

Hope it helps.

If you're able to, can I be a bother and ask some questions? Did you do right to choose and if so who did you go with?

I'm looking for recommendations since I had such a horrible time on the NHS, requested ICB funding for assessment outside local MH services.

in reply to Heather 👻

@Heather 👻 I went private. ADHD360. I'm in two minds about them because I had a good experience but I know someone who had a very bad one.
in reply to Sarah Brown

Yeah it's a shit deal sometimes.

I went with NHS but am now on complaint#2. First assessment was with a yr 1 specialist GP in training, no supervisor, claimed I had the inattentive bits but no hyperactive so said it wasn't ADHD. Complained, got "second opinion" with consultant who said he thought I had ASD and refused to even discuss ADHD without school reports.

in reply to Sarah Brown

... Yup. I'm pretty sure a care plan shouldn't be "Akkikins will come back with school reports.
I refuse to see her until she produces school reports.
I've referred her for ASD assessment"
ASD questionnaires came back very unlikely to point not put on waiting list (AQ50 6/50, cambs behavioural empathy score of 69/80) so... Guess I was right? But refusal to assess me properly. Yay.

Anyway, also considering private.



Watched S03E01 of Amazon’s Wheel of Time thing.

Well, it was on while I played with my phone.

Problem with streaming series is they don’t have enough material to fill the seasons they’re given so instead of filler episodes we’re moving to entire filler seasons.

It’s just boring. It’s all boring.

And with years between seasons, nobody can remember what is actually supposed to be happening.

Let’s get back to TV where they get the fuck on with it.

in reply to Sarah Brown

god I'm so confused with it. No idea what's happening. It's very pretty; the costumes are nice and the twinks are cute. This sums up the reasons I'm still watching.
in reply to homosexual noncompliance

@anandamide It’s very simple. There are some acolytes and I’ve forgotten most of their names but they did some stuff and now they must go to this other city except, no, wait, they’re going to a slightly different city. Just meeting up with the baddie from the last season because we do coffee now. It’s a thing. Ooh, look at the one in red walking in an evil way! PSYCH! We’re actually going to a different city! Oh no, they stole the McGuffins of power!
in reply to Sarah Brown

How do you have filler when you're adapting a 14-brick series?

(I watched S1 then was disinclined to renew my Prime subscription)