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in reply to Sarah Brown

need to get the Greens enough vote scare to scare Labour into moving left before then.
in reply to Sarah Brown

on the other hand though, support from Scottish Government to end conversion practices. And some nice discussion on why, which makes it harder for other governments to ignore. gov.scot/publications/scottishโ€ฆ


You know how neurotypical people talk about how they make and hold eye contact?

Itโ€™s a lie. They do no such thing. I can do it on ADHD meds and if you donโ€™t look away it really freaks them out.

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friendica (DFRN) - Link to source

Dramatic skies over Hendaye marina at the base of the Pyrenees today!

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Sharing my departure and arrival details on the orca attack WhatsApp has a very โ€œshit has got realโ€ feeling to it. Have to be careful from here on in.
Unknown parent

friendica (DFRN) - Link to source
Sarah Brown
@Matthew Exon LOL, no. We're just in Orca Alley now.


Operation Churro, moving Scarlet to the French/Spanish border, ends after 172 nautical miles and 35 hours at sea. We are exhausted.


Been at sea for 32 hours and the Pyrenees have just emerged from the haze. We are nearly there.


Last year Zoe and I commenced operation โ€œOui Oui Baguetteโ€ to move our boat, Scarlet, from Gosport to La Rochelle in France. This was interrupted by a small engine fire which left us stranded in the Brittany port of Quiberon over winter to make repairs.

Anyway, we moved the boat to La Rochelle a month ago. Today we commence โ€œOperation Churroโ€. We plan to leave La Rochelle shortly and in a single leg of 36-40 hours in the Bay of Biscay arrive at Hendaye on the French/Spanish border.

The orcas were attacking boats in this area about a month ago but since then seem to have moved west and are now heading south from Galicia to Lisboa so we should be safe from them (fingers crossed). Weather looks ok. We will probably be motoring for the first part with the hope we can sail from later today.

If you want to track us, you can follow us live here. marinetraffic.com/en/ais/detaiโ€ฆ

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โ€œWhat you gonna do when you randomly have 12 months supply of HRT sitting around in your drawer, Sarah?โ€

โ€œBuild Oestrohenge!โ€

Unknown parent

friendica (DFRN) - Link to source
Sarah Brown

@Christine Burns MBE ๐Ÿณ๏ธโ€โšง๏ธ๐Ÿ“šโง– See the little spray bottle in the middle?

That's more than a third of the E in that picture.

And none of that bottle came from a pharmacy of any kind ๐Ÿ˜‰



This, right here, is what I look like right after the Elvanse wears off.

Sad, isnโ€™t it?



Ah, mal de debarquement syndrome (land sickness), my old friend! Been a while. Havenโ€™t missed you.


At some point in the last 4 months since starting ADHD meds the state I regard as normal has swapped over.

Iโ€™m currently in the post medicated state and I feel like some confused scared shadow of a person terrified of her own emotions which she doesnโ€™t understand and bemused by the world.

This used to be who I was all the time.

Thatโ€™s a lot to come to terms with.

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in reply to Sarah Brown

Oh I get it now, thanks. Post-medicated as in, the part of each day when the meds wear offโ€”not the part of your life after you started taking the meds.


So whatโ€™s it like being on amphetamine?

Well itโ€™s a lot like being on HRT except youโ€™d have to detransition every day before bed.



Long form ADHD brain dump
#adhd

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in reply to Sarah Brown

Long form ADHD brain dump
in reply to Valdus

Long form ADHD brain dump

@Valdus With some more exploration, timing the stimulants to run out just before bed, IF I then actually go to bed. Too long and not only do I lose the executive function to go to bed, the racing thoughts start up and keep me awake.

However, there's a nice little cheat mode to get round this that I've discovered, which I like to call, "a bedtime double espresso"



Trans on Trains, "just taken dexamphetamine" edition.


Amphetamine plus afternoon coffee always carries a risk of extreme eepiness. I feel a nap coming on.
in reply to Sarah Brown

Ignore me, I didnโ€™t mean to confuse or upset you. Just wishing you the best. ๐Ÿคž


I feel like iPhone MagSafe has so much unrealised potential for carrying โ€ฆ stuff. Like I want a little pouch in which I can keep smell essentials. A sort of keyring plus.


Iโ€™m having a custom corset made because Iโ€™m worth it. Went for the fit test of the mockup today (the final thing is a sumptuous red with black lace detail).

Anyway, sheโ€™s gonna take it in another 2-3cm at the waist and give me more push up in the bust.

Exciting!

in reply to Sarah Brown

I saw the medication news and I'm really happy it's working for you!
Me? I don't know how up you are on things ooop North.... I could talk about my wonderful partner @psotle , our travels and adventures, finding a job that feels *right*, we had a second cat for a few months...
I'll settle for life is good, I'm in a good place and really exciting adventure to come later this year โ˜บ๏ธ



Selfies. One medicated, one unmedicated.

I feel like Iโ€™m leading a weird dual existence. Not two people but one person who has a consistent personality but two very different ways of being.

Itโ€™s so odd.



I honestly did not expect starting ADHD meds to result in me seriously considering almost completely giving up alcohol.

Almost seems a shame. Whatever. Gotta move on.

Unknown parent

@Alexa Devreux-Swift I was mostly using it to relax.

But itโ€™s kinda crap at that compared to amphetamine.



So, bit of a problem and itโ€™s a nice problem to have, but still a problem.

The ADHD meds are working better than Iโ€™d dared hope.

Iโ€™m almost functionally neurotypical on them.

I have no neurotypical socialisation though. Iโ€™m a neurodiverse person cosplaying but not masking. Ok. Bit odd. Whatever.

Pretty much all of my friends are neurodiverse.

This appears to be fine amongst the ones who are ADHD and medicated.

The ones who arenโ€™t though; I really need to stop making eye contact because I think Iโ€™m freaking them out.

Sorry everyone x



ADHD meds are dangerous! They cause hypertension! You must not take them! - some wankers.

The โ€œhypertensionโ€

in reply to Sarah Brown

lolz, just tested, 148/102 ๐Ÿ˜† yeah... you do not have hypertension... but I do.
in reply to dee

@dee, love and enby Honestly I'm approaching the "don't stand up too quickly" zone.
@dee


Breakfast of champions (if your champion happens to be a chaos goblin). Clockwise from left: blood pressure monitor, cereal, water, protein yoghurt, lisdexamfetamine 50mg.

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This blows my mind. My sleep data from Apple Health over the last 6 months.

The green line marks the point I started amphetamines. It doesnโ€™t make a lot of difference.

The red line: I read Sisters of Dorley

in reply to Sarah Brown

... Yeah I'm now considering this. Not the first to suggest it. Just not sure if I can easily access testing (or afford it). It's all bullshit.


in reply to marlies

@marlies Nice when it suddenly all drops into place, isnโ€™t it? ๐Ÿ˜Š


in reply to Zoรซ O'Connell

@zoe @marlies

Always interesting seeing variation in what meds do and don't allow and how to balance desirable and less-desirable things and learning to live with a changed neurology.



ADHD med titration continues apace. Iโ€™m sticking with 50mg Elvanse (lisdexamfetamine) and adding in 10mg Amfexa (dexamphetamine) as a booster to get me through the evening.
Unknown parent

@Becky Yeah. Theyโ€™ve basically fixed my IBS and reflux issues too.


I honestly never dreamed my life would go in the direction of having to manage the duality of being a functional adult who can do adult things in the daytime and is sensible and all that stuff, and a chaos goblin by the evening.

The transition I saw coming from a long time before, if Iโ€™m being honest. But while neurodivergence was always obvious to anyone who met me, finally getting the actual answer and following it through to Planet Amphetamine and all that implies has blindsided me a bit.

These drugs are very very weird to be on.

But they may have saved my life.

in reply to Sarah Brown

I'm glad the drugs are so helpful, I know there's huge variation in how helpful they can be, but so positive at such an early stage. Hope your titration/jibbling continue to go well and you get an optimal configuration for you.


The single weirdest thing for me about being on Elvanse for ADHD is getting to spend each day as a functioning human being with regulated emotions and executive function, but knowing that the clock is ticking and that when the timer runs down I am going to return to being a self-hating hyperactive messy vial of emotional nitroglycerin.


Oh god. I am feeling utterly SEEN by this. #ADHD m.youtube.com/watch?v=k-k2_Lioโ€ฆ
#adhd


Extreme sports, Iberian edition: about to take the lift.

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Having my first day off Elvanse.

Plan is all about self care. Avoid stressful stuff. If there is ANY hint of pushback against anything that needs doing, then I will make it a problem for future Sarah.



I feel like thereโ€™s a lot of reverse ableism with people telling me that the REAL problem with ADHD is that I am โ€œtraumatisedโ€ by a world that isnโ€™t adapted to my needs and that were it not for this โ€œtraumaโ€, I would be able to function just fine.

If itโ€™s trauma, why does a single pill that raises my dopamine levels switch it off like a light switch and turn me into an emotionally stable adult with executive function?

in reply to Sarah Brown

I had a shower and thought more (as you do) and maybe it's just the usual problem of people projecting their own problems. Also medication only works for about 70% of people with ADHD and not everyone has the glorious epiphany you have (congrats tho!)

Also I wonder, like in my case, my DMN is rather strong and annoying... Combined with high empathy (confirmed medically kinda now due to the stupid ASD screening) it's a rather hard-mode life for me.



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in reply to Heather ๐Ÿ‘ป

@zoe
12 May I hear the response to my official complaint. We'll see if they can offer outside assessment or just fuck me over some more and claim i'm just "unhappy" with the suggestion of ASD/anxiety/whatever they wanna make up.


Am I just deluded in thinking that when I was a younger adult, journalists at least PRETENDED to hold politicians to account?
Unknown parent

@christineburns Good question, I was wondering about that too. It was mostly the Telegraph who covered it, but they actually did a pretty good job, and I think things even changed as a result.

Yes, I think we can count it.



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One thing I did NOT expect from ADHD meds: much easier to put my contact lenses in.

I guess my eyes are no longer darting about all over the place.

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Elvanse LOWERING my BP

Itโ€™s supposedly at risk of doing the opposite.

How bloody stressed was I before?

in reply to Sarah Brown

For about a year now every day after lunch when the second Medikinet dose kicks in, I get so sleepy that I have to sleep for 30min on our couch. Coping is stress and you get so used to it... ๐Ÿ˜ฉ
in reply to Sarah Brown

This is why my kid drinks coffee to help them sleep


Still not got a good answer to the question of how neurotypicals have fun.

Like, it has recently come to my attention that you lot get a dopamine reward for picking up your socks off the floor and putting them away. I have now experienced this and, wow! Yeah. Very cool! Neat trick you have there.

So why spend money on leisure activities when you can just pick shit up?

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in reply to Kincaid

@Kincaid Honestly it feels pretty good to me.

But I guess Iโ€™ve been on starvation rations for 51 years.

in reply to Kincaid

@Kincaid Update: yeah. Ok. Fair enough.

The novelty of ANY hit at all was quite a thing at first. Now I appreciate your point.

in reply to Sarah Brown

and the hit isn't for doing the laundry, it's for not having to do the laundry in the immediate future. The doing still sucks
in reply to Kincaid

@Kincaid Laundry pile is smaller.

Look, I've seriously been STARVING my entire life. A biscuit is a banquet.



Itโ€™s really starting to hit me now. All those years I wasnโ€™t lazy. I wasnโ€™t deliberately obstructive. I wasnโ€™t thoughtless. I wasnโ€™t careless. I wasnโ€™t a deliberate arsehole.

My neurology literally wouldnโ€™t let me slow down, do stuff, talk quieter, not interrupt, not go from 0 to โ€œtemper tantrumโ€ in 2 seconds, remember where I put the thing I was holding 1 second ago. Not want to end people for talking too slowly.

One pill fixes it all. One sodding pill.

51 years.

Thereโ€™s more grieving to come here, I think. A lot more.

And no, everyone is NOT โ€œa little bit ADHDโ€. You have no bloody idea.

in reply to Sarah Brown

@Ghost of Hope ๐Ÿณ๏ธโ€โšง๏ธ Just remember, nobody in your family has cardiac issues. You do not do substance abuse. You have never borrowed someone else's prescription medicine.

Because of course you wouldn't do those things.

Unknown parent

friendica (DFRN) - Link to source
Sarah Brown

@Ghost of Hope ๐Ÿณ๏ธโ€โšง๏ธ Heart failure in extreme old age probably fine.

They will get weird if they think you might have cardiac issues.

โ‡ง